This Wednesday Ethan is being moved to Seattle Children's hospital.
This is undoubtedly going to be a MAJOR lifestyle shift for both of us.
There is not much more news beyond that. If the Social Worker doesn't get all her ducks in a row tomorrow, then we will probably be moving on Thursday.
We will let you all know more as the news comes!
- Kip, Tia, Riley, and Baby E -
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Hello Ethan and Family:
I came across your blog by accident and have read most of your entries. Your blog came up when I was searching for Microvillus Inclusion Disease, which my son has. I am so happy that Ethan's test came up negative, we know firsthand how frustrating it can be waiting for an answer to what is going on.
I was reading through your earlier blog posts I saw that you had mentioned that his liver was starting to suffer from being on TPN, and originally I was going to write you about Omegaven. Since you are on your way to Seatle you will, thankfully, be in a place that can provide him with it. I was so happy to hear that you will be able to get him off traditional lipids and onto fish oil. It has saved our son, and many other children.
Ethan will be in our thoughts and we hope that the doctors in Seattle can provide you with some answers soon!
Take Care,
Jason & Deb O'Connor
www.samoconnor.com
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